I haven't written in so long and so much has happen...........
Syniah is now 6 months old and has 6 teeth. She is such a fun baby. She loves to watch Yo Gabba Gabba, She loves to eat Bananas, and She adores her puppy Lady. Syniah has just started to wear size 3 Diapers and wore her first 6 month outfit yesterday. She is growing up so fast! I feel as though all this time is just passing me by. I can't imagine her crawling or walking and I just don't think I am ready for that. Sometimes I look at her and I just want to hold my newborn baby again. It seams as though she is growing so much faster now that I am working. I thought having to go back to work was the hardest thing I would be faced with as a parent. I am so depressed and sad. I drive to work and cry a lot. I don't think anybody could understand how much my heart hurts when I get into the car and drive to work or is this the way all Mamas feel?
I didn't think I could endure more hurt as a parent than the hurt I felt leaving her every morning until now. Syniah was in Kindercare for about 3 weeks and On Thursday 9/25/08 I went to pick her up and they told me that she slept all day and didn't drink too much. She seamed normal but not drinking her Baba was out of the ordinary. We babysat Alyssa on Friday and Syniah was happy and playful. On Saturday morning at about 4:00am Syniah was moving around in her crib and kind of moaning. When I went to pick her up she was burning. I took her temperature and she had 104.5 fever. Being a first time parent I freaked out and I immediately gave her Tylenol and called the doctor. The doctor told us to give her Tylenol because there wasn't any appointments available that day. Syniah's fever never went down and for two weeks we were going back and forth to the doctors office. They ran test on her but all the results were coming up negative. They gave her antibiotics but they weren't working.
On Wednesday October 8th, 2008 Ervin called me at work and told me that Syniah was not doing well. I came straight home and put her in the bath because she was burning and I needed to cool her down but she started shaking. I didn't know if she was having a seizure but I instantly knew something had to be wrong. Everything the doctors were telling us these past two weeks had to be wrong. My baby was really sick. Something terrible was going on in her body. I am her Mom. I knew something was seriously wrong. Ervin and I didn't think twice...... We took her straight to the emergency where they took her temperature and she had 105.6 fever. The emergency room admitted her right away and ran test on her. They gave her Tylenol through a suppository, drew blood (they poked her several times because they couldn't find her vain), and inserted a catheter to be able to take an accurate urine sample (had 4 different nurses try and put it in and they had a hard time before they were successful). I was so frustrated. Syniah was so upset. The test came back negative. The doctors decided she would need a Spinal tap to test her for meningitis. I lost it. I still can't believe I was watched my baby go through that. She was suppose to stay completely still on her tummy in a fetal position. What 5 1/2 month old wouldn't be upset let alone one with 105 fever? She was screaming and it was hard for me to watch them stick that needle into my daughters spine. Ervin was very strong. He had to hold her in that position and I can imagine it hurt his heart to watch her. I am so thankful for that man. Niah fell asleep and we waited and the test came back negative for meningitis.
What now? The doctor switched shifts and the last doctor who came looked at her chart and said we have done everything. We are not sure what is going on with her. She might have Kawasaki disease. What the heck was that? I immediately googled it and saw there were only a few cases in the world. It can cause heart failure and the immune system to fail. As I was freaking out and reading the Doctor came back in the room and said, "Nobody has given her a chest x-ray?" NO! He ordered an x-ray right away. Syniah was suppose to keep completely still again. Did they not know she was only 5 1/2 months? The doctor brought in her X-ray and showed us that she had full blown Pneumonia covering both lungs. Finally after 2 weeks and a horrible experience in the ER we had answers, but what now?
Syniah was immediately admitted into the hospital. Hooked up to IV's and monitors. A mother's worst nightmare. It was a roller coaster ride of emotions. I don't wish for any parent to go through what Ervin and I went though. We watched our baby girl endure pain and discomfort. Syniah was being woken up every 4 hours so they can draw blood, once the nurses knocked on the door she would get so paranoid and would start crying. It was hard to watch her go through this especially being so little. Ervin and I took turns going home to take showers. Such a hard experience but we had a lot of support. Wonderful friends and family that showed her so much love with prayers, gifts, and visits. Made me realize the people who matter most in our life. She is one loved little girl. Her hospital room had people coming to see her at all times. We are so blessed
Syniah got stronger. She even started trying to roll over. She watched Yo Gabba Gabba from her hospital crib. Thank Jesus for Yo Gabba Gabba. No matter what she was feeling that day when that show came on she would get so excited. My girl is a fighter. She had a horrible month but she is strong and there are many great months and years ahead for her. I am so thankful to God for watching over her and putting his healing touch over her body.
Most of all thank you Jesus for your "AMAZING GRACE."
Our Syniah GRACE.
The best Dada a little girl can have.
Dada and Yo Gabba Gabba. Two of her most favorites.
THANK YOU, to ALL of this very loved little girl's visitors
Nobody gets giggles from her like her Nana. Syniah's Best Friend.
An empty bed! I tried to lay in it once and got in trouble by the nurse. She made sure that if I couldn't read English then she would put it in Spanish.
Our Bed.
Finally eating and happy about it.
I am so in love with this little girl. She has forever changed my life.
Going for a walk around the pediatric ward.
I love that smile.
Ouch.
Going home
After this long journey she still has a long road to recovery but she is getting better and there is no place to heal than at home with Mama and Dada.
Thank you everybody for your prayers.
We love you Syniah Grace.
